Arthrogryposis Amyoplasia (AMC) is congenital disorder characterized by multiple contractures and deformities in the joints. It is estimated one out of every 3,000 children are born with a form of AMC. Braydon Kimbrough, a 2-year-old Chillicothe boy, is one of the few affected.
Due to his disorder, Braydon, the son of Steven Kimbrough and Kelsie Lamp, has little to no movement in the majority of his joints.
"It's pretty much just a muscle disorder in the bones," Lamp explained. "His bones didn't develop, and the muscle grew in between his bones. Nothing really bends. It affects all four limbs, his hands, wrists, fingers, feet, ankles, knees, hips."
With limited mobility joints, Braydon has created his own way of performing normal tasks.
"He uses his mouth to hold a crayon to color," Braydon's grandmother, Kim Kimbrough, explained. "He does things his own way, and he gets things done."
In just over two years, Braydon has underwent multiple surgeries, at the Shriners Hospital for Children in Philadelphia, in an attempt to increase mobility.
"He's had 36-40 weeks of casting from surgeries," Kim explained. "When he was born, his intestines were on the outside. That's called Gastroschisis. He had the Gastroschisis repair surgery, tendon release surgeries on the ankles and a bilateral hip reduction. We're scheduling him now for his elbow release and the shoulder rotation."
In addition to the surgeries, Braydon has participated in therapy since birth to increase mobility in his arms and legs.
"They work on how to feed himself and how to hold things," Lamp said. "We have several personal trainers. We put his braces on, and they get him to walk. We're right now in the middle of trying to get him from the laying down position to sitting up."
Lamp said surgery recovery is different for each person, noting Braydon's condition is not as serious as some.
"It just depends on how he does with it," Lamp explained. "Some kids are mainly stuck in wheelchairs, and some kids can walk. There's children that can't breathe on their own. Some have serious mental problems. I would have to say he's about a 3 or 4. He's limited a lot, but he's not as bad as it could be. Recovery really depends on the child and their attitude toward the whole situation."
Lamp said Braydon is a very happy child who has kept a positive attitude through the numerous surgeries and countless hours of therapy.
"He does really good with it," Lamp said. "After we did the hip rotation surgery, he was in a big cast where he couldn't move anything. He was just the happiest child the whole time. He always has a smile on his face."
This Sunday, June 30, is AMC Awareness Day. The family encourages all to wear blue in support of Braydon and his battle with the disorder. Over the years, Kim has organized a number of local events and fundraisers to help cut the costs on trips to and from Philadelphia for surgery. Lamp also mentioned the strong support system of other families dealing with AMC all over the country.
Page 2 of 2 - "There's a very strong bond because I think the kids can feel the vibes. They realize they're not the only ones," Lamp explained. "Since I'm kind of behind the other parents, they give me advice. I have their phone numbers. We have a big group on Facebook where we can talk to each other."
Lamp wants others to know her son is no different from other two-year-olds. She encourages any and all questions about Braydon's condition, and enjoys spreading the word about AMC awareness.
"He's just like everybody else," Lamp said. "Treat him just like you would any other kid, because he'll treat you the same. We don't get offended about answering questions. I enjoy telling people about him. He's just a joy to have around."